When your child has a chronic or complex health condition, you become a caregiver, and you have to learn a lot … fast. Keeping your child safe at home and in the community starts with understanding the medical devices they use and knowing how to be safe with those devices. Super Safe Kids books and toolkits help introduce families to central lines, tracheostomies, feeding tubes and complex care.
Books for kids and families
Central Line Safety for Kids teaches kids and families evidence-based practices for safety and care of central lines, focusing on hygiene and patient safety guidelines from the Centers for Disease Control and Prevention. Written with consultation from a pediatric hospital safety committee.
Tracheostomy tubes can help kids breathe and stay healthy. Tracheostomy Safety for Kids helps kids and their families understand the respiratory system and evidence-based practices for caring for a tracheostomy. Written with consultation from a top-ranked pediatric pulmonology team.
Feeding tubes work with the body’s digestive system to help people stay healthy and well.
Feeding Tube Safety for Kids introduces kids and families to the digestive system and the different types of feeding tubes, along with ways to stay safe with a feeding tube. Release date: February 2021
In-home nursing can be a lifeline for parents who are juggling careers, family and the care of a medically fragile child; however, opening your home to nursing can also come with its own set of challenges.
Home Care CEO will help you manage the tasks related to in-home care and find excellent providers who help the child and the family.
Managing a chronic condition
For kids with chronic conditions, safety means understanding what needs to be done and the best ways to do it. Families can support safety and health by working closely with healthcare teams to get the latest information.
Understanding your child’s condition is important, even if you don’t have a formal diagnosis. Your child’s challenges, needs and strengths guide the process of setting goals.
Working as part of your child’s healthcare team means communicating your child’s goals, challenges, and needs so everyone is on the same page about the care your child needs.
Complex care is…complex. That means you probably have to rely on more than your memory to keep things straight. A binder or accordion file dedicated to medical care can help.